Prospecting SEHAT-Kader Project to Decrease Perceived Stigma and Improve Quality of Life People Living With HIV/AIDS at Kudus District, Central Java
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Author:
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ERNAWATI ERNAWATI, NURSALAM NURSALAM, SHRIMARTI RUKMINI DEVY, SITI AMINAH, AHMAD FATHUROHMAN, TRI HARTITI, ARIEF YANTO, MACHMUDAH MACHMUDAH
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Abstract:
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Background: People living with HIV/AIDS (PLWHA) experience various difficulties in life. Society gives them
a strong stigma that causes poor quality of life. Although they had been gotten support from cadre, however
the cadres themselves encountered many obstacles during accompaniment. This study aimed to explore the
prospect of comprehensive HIV/AIDS care with the electronic system (SEHAT-Kader) as a personal health
record in information systems for PLWHA and their special needs plan based on Web to decrease perceived
stigma and improve quality of life PLWHA.
Method: A qualitative research method was used to gather experiences of managing stigma and health
condition status PLWHA and how are perceptions and barriers regarding challenges to designing SEHAT-
Kader application at Kudus district, Central Java. The study had been carried out during February 2019-April
2020. The sample comprised PLWHA, cadre members, and case manager. We conducted 2 focus groups with
members (n=12). Data were thematically analyzed.
Results: The study revealed that mayor problems of HIV/AIDS's cadre in Kudus district, Central Java are: the
extent of coverage area and accompaniment ratio is disproportionate (1 cadre:45 PLWHA); fear direct contact
and being HIV infected; the manual data record system, so often error and lost; Cadres needed an information
system to monitor the health conditions of PLWHA. The “SEHAT-Kader” app is designed as a personal health
record for PLHIV information systems and information technology-based special needs plans to reduce
perceived stigma and improve the quality of life of PLWHA.
Conclusion: The features of SEHAT-Kader application designed to support routine operational activities of
user groups, namely cadre companion, PLWHA, and case manager as care coordination or administration
personal.
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Keyword:
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HIV/AIDS Cadre, SEHAT-Kader application, PLWHA, Perceived Stigma, Quality of Life, mobile self-management
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EOI:
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DOI:
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https://doi.org/10.31838/ijpr/2021.13.01.047
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